Thursday, September 13, 2012

Cruising Along

Farrah is still off the vent and is only getting support from the high flow cannula, which she would prefer to pull out at any moment. She also tries to tug on her feeding tube, so the nurses either have to swaddle her or dress her in an outfit where the cuffs fold over into mittens. Farrah is more active every day and definitely loves working out her vocal cord. Her cry is loud enough that we can hear it when she is in the isolet. It is so nice to hear her cry and to watch all her little movements.

Farrah's high flow cannula settings are lower than they were over the weekend. They hope to wean her off completely. Farrah's care team is very cautious about any changes they make with her. Today they wanted to keep Farrah in her isolet for most of the day in hopes that she would start to gain more weight. To everyone's surprise, she actually lost a little weight. This tells me that holding her is what is best for her right now, which is how I felt all along.

Please pray that Farrah's lungs will get stronger and stronger, that she will begin gaining more weight, that she will keep regulating her temperature once they move her into an open crib, and that she will be protected from any other infections. Farrah has had a tough road and is such a trooper.

We are looking forward to a nice weekend with lots of sleep and plenty of time with Farrah.

I'll close tonight with with a quote from Peek-A-Boo ICU that does a wonderful job of summing up how we feel.


With every breath you take, you take my breath away.

With every beat of your heart, my heart skips a beat.

With your every hour you fight, you teach me winning takes patience.

With every tear you shed, I shed a thousand more.

With every gaze you give me, I see a clearer picture.

With every ounce you gain, I gain an ounce of hope.

With every step forward you take, I stand up taller with pride.

With every gentle grasp my finger, you show me the true meaning of strength.

With every bit of your courage, you teach me how to be brave.

You are my pint sized hero...super mighty and supremely loved.


Strong but MIGHTY - that's our Farrah!

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